The Cystic Fibrosis community has been "social distancing" since before the term even existed. Having a genetic disease that causes chronic and fatal lung infections causes a need for CF patients to remain six feet apart from one another.
Laura Bonnell has two daughters with CF, and that motivated her to create The Bonnell Foundation for Cystic Fibrosis. This September 26th, they will be hosting their annual Night of Hope. Like many organizations, the event has gone virtual. In this case, however, this format allows much more flexibility and inclusion among the CF community.
Today, we preview the Night of Hope, with its numerous musicians, artists, and prizes available for attendees.
We also take a look at what the medical community has learned from Cystic Fibrosis, and how those lessons have informed the battle against COVID-19. Mask wearing, social distancing, and accelerated clinical trials have a lot in common with Cystic Fibrosis treatment.
Resources:
Night of Hope: https://thebonnellfoundation.org/event/night-of-hope-celebration/
The Bonnell Foundation Website: https://thebonnellfoundation.org/
Laura's Podcast, Living with Cystic Fibrosis: https://livingwithcysticfibrosis.simplecast.com/
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